San Francisco, 19-20 April 2013

"The Truth of Personalized Medicine: Our Commons Future"

2011 Congress Agenda

(3 Sept 2011) Updates on the post-Congress Workgroup/Community of Interest activities are available in the Sage Bionetworks web site.

(29 April 2011) Video Podcasts of the congress presentations are now available on iTunes as well as on the Sage Bionetworks podcast page.  By subscribing you can automatically receive future audio and video podcasts of important presentations and interviews.

(17 April 2011) Congress Presentations and Videos available on line

(13 April 2011) A list of attendees is available for download.


April 15, 2011 – Part 1:  

Achievements of the Past Year

A patient perspective on healthcare followed by summaries of the new projects that have emerged since the 2010 Congress as a demonstration that the efforts of the Commons over the past year have paid off.  The Federation, the Commons Platform, Repository and independent projects like SageCite will be featured. Sage Bionetworks will review its own internal development work and a new journal for sharing models will be announced.

7:00, 7:30, and 8:00  Shuttle Buses from Hotel to Mission Bay Conference Center
7:30-8:30  Registration, Coffee and Continental Breakfast

8:30–9:00   Introduction – Stephen Friend - Robertson Auditorium
9:00-9:20    Keynote – Patient Advocate:  Peter Kapitein, Inspire2Live
“Why health care is broken from the patient perspective”

9:20-9:35  Sage Bionetworks Research – Jonathan Derry
9:35-9:50  Data Repository – Lara Mangravite
9:50-10:20 Commons Platform – Michael Kellen / Brig Mecham

10:20-10:45 Coffee Break

10:50-11:40  Federation Project Reports on
1) Aging – Greg Hannum
2) Diabetes – Peter Kang
3) Warburg Effect - Xudong Dai & Mariano Alvarez
11:40-11:50 Lessons from the Federation – Atul Butte
11:50-12:05 SageCite and Patients Participate! – Liz Lyon
12:05-12:15 Open Network Biology -Eric Schadt

12:15-12:30 Lunch & Audience Questions & Discussions
12:30-1:30   Lunch & Keynote: Aled Edwards, Structural Genetics Consortium
“Why health care is broken from the scientist perspective”

April 15, 2011 – Part 2: 

Communities of Interest

The second part of the Congress will engage the audience directly in one of five Sage Bionetworks “Communities of Interest”.  There will be opportunities for hard science engagement, construction of advocacy plans, policy discussions, research presentations, and briefings on progress and external efforts. The workgroups will focus on: What is needed next? How can I help build it and how can we ensure it leverages existing efforts? What can I do to help the platform serve its best role for the community? By the end of the session attendees will be able to see themselves and their work integrating into the Congress and Commons, and have created new connections with other attendees.

The Communities of Interest are:

A. Engaged Public – Fisher A
How can the public become more actively engaged in building better maps of disease? New roles for citizens and patients in building disease models and encouraging sharing.  -Summary- Leaders: Lara Mangravite & Sharon Terry

B. Map BuildingFisher B
Where are the best disease models? Who is building them? What are the next directions?  -Summary- Leaders: Jonathan Derry & Eric Schadt

C. FederationConference Room 2
What really is the Federation? How has it worked? How do you plan to expand it?  -Summary- Leaders: Justin Guinney & Andrea Califano

D. Enabling SharingConference Room 3
Moving away from current practices of collaboration: Draft key documents that can allow unlocking of currently inaccessible data sources.  -Summary- Leaders: John Wilbanks, Robert Cook-Deegan, & Jonathan Izant

E. Compute PlatformRobertson Auditorium
What is the computational platform you are building? What is needed next? How can I help build it and how can I use it? What can I do to help the platform serve its best role for the community?  -Summary- Leaders: Mike Kellen & Martin Morgan

1:45-5:15 Afternoon Concurrent Community of Interest Sessions:
Introduction and orientation for the challenges facing the Community of Interest Workgroups. These will begin as summaries of the problems and opportunities and evolve into interactive working sessions. It will provide smaller group settings to talk with key thought leaders in the broader Commons community. Work and discussions will provide the opportunity for extensive participation and contribution.  Focus will be to identify goals and targets for the next year and produce tangible outputs ranging from policy outlines to software requirements to community messaging materials. This session will help to create the beginnings of a stronger and lasting social network between those engaged in the Communities of Interest as well as establish specific tasks and goals for the coming year. Workshop summaries and reading materials are available on the linked web pages.

5:15-5:45   Poster and Demo Session Opportunity One. – Conference Room 1
5:45-6:15   Shuttle Buses to Reception at Sugar Cafe, 679 Sutter Street (between Mason and Taylor, 3 blocks west of Grand Hyatt)
6:00-8:00 Reception: A social event featuring a presentation by John Wilbanks to knit the participants into a cohesive tribe before participants proceed to dinner on their own.
8:00-        For those interested: Tables reserved at Puccini & Pinetti, 129 Ellis Street (~4 blocks south of Sugar Cafe)

April 16, 2011 – Part 3  

Commitments for 2011

The final part of the Congress will connect the strands of day 1 and consider what can be done.  There will be a keynote on how communities can effect change followed by reports from the five Communities of Interest, concluding with a session where attendees will be asked what they want to do, or will do, as a follow-up to the Congress. Attendees will film each other outlining their commitments as part of both the larger Commons community and as part of their Community of Interest.  There will then be a closing keynote including a report on the large “game changer” by Stephen Friend.

At the conclusion of the Congress attendees will understand how their own work connects to the greater movement of change in how we must approach biology and how biology relates to health care.  Participants will be challenged to articulate how their work from the previous day and over the next year might lead to more sharing, better resource allocation, and faster progress. Participants will have established a set of communities ready to do active work.

6:30, 7:00, and 7:30  Shuttle Buses from Hotel to Mission Bay Conference Center
7:00-8:00   Coffee and Continental Breakfast

8:00-8:20 Keynote: Alyssa Goodman, Harvard – Robertson Auditorium
“Seamless Astronomy: How astronomers share, explore and discover”

8:20-9:00   Keynote:  Vicki Seyfert-Margolis, US Food and Drug Administration
“How communities can work to achieve change in drug discovery”

9:00-11:00 Reports from Communities of Interest

A. Engaged Public – Sharon Terry
B. Map Building – Eric Schadt
15 minute Coffee Break
C. Federation – Andrea Califano
D. Enabling Sharing – Robert Cook-Deegan & John Wilbanks
E. Commons Platform – Michael Kellen

11:15-12:15  Filming of attendee commitments and Poster and Demonstration Opportunity Two

12:15-1:15- Lunch and Congress Summary Keynote: Stephen Friend, Sage Bionetworks



One Response to “2011 Congress Agenda”

  1. Alice Rathjen
    April 11th, 2011 @ 10:48 am

    I won’t be there but we’re ( trying to head in the same direction and hopes to contribute to this effort in the future. Here’s an overview of our approach to help solve the patient/physician engagement piece. Hoping at some point to connect. Good luck at conference. Best wishes for progress.


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