San Francisco, 19-20 April 2013

"The Truth of Personalized Medicine: Our Commons Future"


Theme – “The Truth of Personalized Medicine: Our Commons Future”


The 4th Commons Congress will take place in San Francisco on Friday April 19th, 2013 and Saturday April 20th, 2013. The Congress will run from approximately 8am on Friday through 2:30pm on Saturday, including an event on Friday evening.
The Congress is really only the sum of your participation and input, and we would encourage you to make your travel plans to attend the entire event. As this means that some participants will arrive on Thursday, we will facilitate anyone who wishes to meet with other participants for dinner or drinks.
Thursday Night Delegate Reception – 6-9pm in the Grand Hyatt One-Up Lounge
Early Registration – Thursday 4-7pm in the Fillmore Foyer, Theatre level


7:30 AM – Registration and Continental Breakfast

– Grand Ballroom Foyer

8:30 AM – SESSION 1: The Reality of Personalized Medicine

As our starting point for the next 2 days, we will outline the reality of where we are, and also point out why we should be optimistic with the results appearing from top – down mathematical modeling and bottom-up governance and data sharing.
Stephen Friend. John Wilbanks (Sage Bionetworks)

Sponsored by Sanofi-Aventis, 2013 Platinum Sponsor

10:00 AM – Break

10:20 AM – SESSION 2: What can we learn from outside our biomedical world?

In this session, three keynote speakers will present how they have addressed the challenges of bringing people together and changing methodologies in three very different scenarios – the Middle East and the turmoil of the last years – hurricane and tornado prediction – global HIV action.
Keynote: Wadah Khanfar (Co-founder Al Jazeera). Kelvin Drogemeier (Vice-chancellor University of Oklahoma). Joep Lange (HIV Researcher and activist– University of Amsterdam)

Sponsored by Takeda, 2013 Gold Sponsor

Noon – LUNCH: With project teams

Over lunch, groups will be introduced to specific projects identified for them to collaborate on and present during Saturday. After learning about the project, keep this in mind for the rest of the day’s presentations.

1:00PM – SESSION 1: Our tools – your toolkit – making it happen

Here we will showcase the tools, systems and infrastructure projects that Sage Bionetworks has developed to enable open, Commons-based, research. We will cover both the computer platforms and the governance structures that are now in place. Our keynote speaker will showcase how to apply new technologies in practice and activate groups to get real results.
Sage Bionetworks.
Keynote: Patrick Meier (Director of Social Innovation – QCRI)

Sponsored by Pfizer, 2013 Gold Sponsor

3:10 PM – Break

3:30 PM – SESSION 2: Our tools – your toolkit – making it happen

In our final session of the day, we will continue our look at the work from the Sage Bionetworks team including aspects of research and challenges.
Sage Bionetworks.

Sponsored by Icahn School of Medicine at Mount Sinai, 2013 Gold Sponsor

5:45 PM – Rapid learning – Social connections
111 Minna Gallery

We’re planning a unique event – a series of presentations from a wide range of delegates, including:

  • Anne Wojcicki
  • Greg Biggers
  • Kieran Breen
  • Hugh Hempel
  • Sean Hill
  • Chris Mason
  • Sjaak Vink
  • Colin Hill
  • Charles Hugh-Jones
  • Kris Saha
    We’ll keep the presentations short and to the point by using the Ignite format. This will allow maximum time for small group discussions.
    Followed by dinner catered by San Francisco’s Voodoo Van


    7:00 AM: Continental Breakfast

    8:00 AM – SESSION 1: Making it work

    At the start of day 2, we will continue to hear from some masters in making projects really happen. We’ll also address the falsehood that “open” must mean unprofitable.
    Keynote: Bob Young ( Red Hat). Jennifer Pahlka (Founder- Code for America). Francois Taddei (INSERM)

    Sponsored by Google, 2013 Gold Sponsor

    10:00 AM – SESSION 2: Over to you

    This morning, teams will work on defined existing projects proposed by group leaders. These projects will be examined and discussed to see how the Commons approach can help them progress most rapidly.

    Empowering Real-Time Data on Drug Responses from Citizens Vicki Seyfert-Margolis
    Standards for Reusable Genomic Resources Jason Bobe
    Enabling Patient Advocate Groups Margaret Anderson
    NextGen Public Driven Longitudinal Studies Susan Love
    The Rapid Learning Loop in Precision Oncology. From Research to Clinic and Back Again. Sarah Greene
    Creating bottom-up patient-centric platforms for long tail diseases Jimmy Lin
    Citizen Driven Medical Communities Peter Kapitein
    Crowd-Sourcing Responders Robert Plenge
    Transparency through the Leadership of Publishers Myles Axton
    Building Knowledge Networks for Neuroscience Magali Haas Alex Pico
    Designing a Cancer Genomics Commons Kenna Shaw
    Nurturing the Interface of Citizen Science Jennifer Couch
    An Open Source Approach to Fighting Alzheimer’s Disease George Vradenburg

    At the end of this session each team will prepare to present back to the main group.

    Noon – LUNCH: Over to you – Presentations

    Over lunch we will hear from the project leaders on how they envisage the Commons approach working to help their project and their next steps.

    2:00-3:00 PM – Closing session: Extrapolating to the Future – Realities and Issues

    Panel Discussion: Tony Ford-Hutchinson (Sage Bionetworks Board of Directors), Jeff Hammerbacher (Cloudera), Eric Schadt (Icahn School of Medicine at Mt. Sinai), Gustavo Stolovitsky (IBM), and John Wilbanks (Sage Bionetworks)

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